The Prader-Willi Syndrome Association of New England is a chapter 501(c) (3) organization. Our mission is to educate, support and advocate for the best interests of all persons diagnosed with Prader-Willi Syndrome (PWS).
Join our mailing list and stay in touch with the latest news from our association!
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The Prader-Willi Syndrome Association of New England is a chapter 501(c) (3) organization. Our mission is to educate, support and advocate for the best interests of all persons diagnosed with Prader-Willi Syndrome (PWS).
We strongly encourage members to organize events that fit the mission of PWSANE, and which are convenient for themselves in terms of location, activity and purpose. Please contact us if you have any event ideas!
There will be no 2020 PWS walk this spring. The Board was working on details for the walk and had secured a venue, but given the current circumstances, thought it best to postpone the event. We do not have a new date at this time.
Please join us for our first ever Trivia Night! Mike “Sarge” Riley, professional sports announcer and Boston media personality will host a virtual trivia… Join PWSANE for a fun hour of remote music and singing on ZOOM! Mike Leo leads the group with favorite songs, rhythmic beats and…Trivia Night
March 11, 2022
ZOOM
Music With Mike Leo
Feb. 23rd and March 30th 6-7 pm
ZOOM
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Read the latest news from the Prader-Willi Syndrome Association of New England
PWSANE is sponsoring a sibling peer support group program specifically for siblings of individuals affected by Prader-Willi Syndrome. This program is modeled after the…
Read MoreCheck out this development from the University of Connecticut. Read here!
Read MoreThese will be sure to add lots of excitement for our annual walk-a-thon!
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The PWSA of New England website is intended to provide information only. PWSANE does not advocate or endorse any particular provider or therapy. The inclusion of any resource or link does not imply endorsement. It is strongly recommended that you speak with a trusted health professional about what interventions and treatments are appropriate for the person with PWS in your care.